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dc.contributor.authorWendel-Hummell, Carrie L.
dc.contributor.authorLaPierre, Tracey A.
dc.contributor.authorSullivan, Darcy L.
dc.contributor.authorBabitzke, Jennifer
dc.contributor.authorSwartzendruber, Lora
dc.contributor.authorBarta, Tobi
dc.contributor.authorOlds, Danielle M.
dc.identifier.citationWendel, C. L., LaPierre, T. A., Sullivan, D. L., Babitzke, J., Swartzendruber, L., Barta, T., & Olds, D. M. (2022). “Anything that Benefits the Workers Should Benefit the Client”: Opportunities and Constraints in Self-Directed Care During the COVID-19 Pandemic. Journal of Applied Gerontology, 0(0).
dc.descriptionReuse is restricted to non-commercial and no derivative uses.en_US
dc.description.abstractSelf-directed care (SDC) models allow Home and Community Based Services (HCBS) consumers to direct their own care, thus supporting flexible, person-centered care. There are many benefits to the SDC model but access to resources is essential to successful outcomes. Considering the autonomy and flexibility associated with SDC, it is important to understand how SDC responded to the COVID-19 pandemic and the resources available to help manage this situation. We conducted 54 in-depth interviews with HCBS consumers, direct support workers, family caregivers, and providers to examine the impact of COVID-19 on HCBS services in Kansas. Findings illuminate how self-directed consumers carried a lot of employer responsibility, with limited resources and systemic barriers constraining self-determination and contributing to unmet care needs, stress, and burden. Policy flexibilities expanding the hiring of family members were beneficial but insufficient to address under-resourced working conditions and labor shortages that were exacerbated by the pandemic.en_US
dc.publisherSAGE Publicationsen_US
dc.rights© The Author(s) 2022.en_US
dc.subjectHome and community based care and servicesen_US
dc.subjectConsumer-directed careen_US
dc.subjectQualitative methodsen_US
dc.title“Anything that benefits the workers should benefit the client”: Opportunities and Constraints in Self-Directed Care during the COVID-19 Pandemicen_US
kusw.kuauthorWendel-Hummell, Carrie L.
kusw.kuauthorLaPierre, Tracey A.
kusw.kuauthorSullivan, Darcy L.
kusw.kuauthorBabitzke, Jennifer
kusw.kuauthorSwartzendruber, Lora
kusw.kuauthorBarta, Tobi
kusw.kudepartmentSocial Welfareen_US
kusw.kudepartmentSocial Welfareen_US
kusw.kudepartmentSocial Welfareen_US
kusw.oanotes2023/01/13: Per SHERPA/RoMEO, 2023/01/13:

Accepted Version Institutional Repository, Non-Commercial Subject Repository, +4 Embargo: No Embargo Copyright Owner: Authors

Location Author's Homepage Institutional Repository Institutional Website Named Repository (PubMed Central) Non-Commercial Social Network Non-Commercial Subject Repository


Published source must be acknowledged with citation Upon publication, must link to publisher version with DOI Must include statement that accepted for publication Reuse is restricted to non-commercial and no derivative uses
kusw.oaversionScholarly/refereed, author accepted manuscripten_US
kusw.oapolicyThis item meets KU Open Access policy criteria.en_US

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