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    “Anything that benefits the workers should benefit the client”: Opportunities and Constraints in Self-Directed Care during the COVID-19 Pandemic

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    Wendel_et_al_2022_JAG.pdf (338.6Kb)
    Issue Date
    2022-12-05
    Author
    Wendel, Carrie L.
    LaPierre, Tracey A.
    Sullivan, Darcy L.
    Babitzke, Jennifer
    Swartzendruber, Lora
    Barta, Tobi
    Olds, Danielle M.
    Publisher
    SAGE Publications
    Type
    Article
    Article Version
    Scholarly/refereed, author accepted manuscript
    Rights
    © The Author(s) 2022.
    Metadata
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    Abstract
    Self-directed care (SDC) models allow Home and Community Based Services (HCBS) consumers to direct their own care, thus supporting flexible, person-centered care. There are many benefits to the SDC model but access to resources is essential to successful outcomes. Considering the autonomy and flexibility associated with SDC, it is important to understand how SDC responded to the COVID-19 pandemic and the resources available to help manage this situation. We conducted 54 in-depth interviews with HCBS consumers, direct support workers, family caregivers, and providers to examine the impact of COVID-19 on HCBS services in Kansas. Findings illuminate how self-directed consumers carried a lot of employer responsibility, with limited resources and systemic barriers constraining self-determination and contributing to unmet care needs, stress, and burden. Policy flexibilities expanding the hiring of family members were beneficial but insufficient to address under-resourced working conditions and labor shortages that were exacerbated by the pandemic.
    Description
    Reuse is restricted to non-commercial and no derivative uses.
    URI
    http://hdl.handle.net/1808/33713
    DOI
    https://doi.org/10.1177/07334648221143604
    Collections
    • Social Welfare Scholarly Works [183]
    Citation
    Wendel, C. L., LaPierre, T. A., Sullivan, D. L., Babitzke, J., Swartzendruber, L., Barta, T., & Olds, D. M. (2022). “Anything that Benefits the Workers Should Benefit the Client”: Opportunities and Constraints in Self-Directed Care During the COVID-19 Pandemic. Journal of Applied Gerontology, 0(0). https://doi.org/10.1177/07334648221143604

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    Contact KU ScholarWorks
    785-864-8983
    KU Libraries
    1425 Jayhawk Blvd
    Lawrence, KS 66045
    785-864-8983

    KU Libraries
    1425 Jayhawk Blvd
    Lawrence, KS 66045
    Image Credits
     

     

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