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dc.contributor.authorRigby, Taylor
dc.contributor.authorJohnson, David K.
dc.contributor.authorTaylor, Angela
dc.contributor.authorGalvin, James E.
dc.identifier.citationRigby, T., Johnson, D. K., Taylor, A., & Galvin, J. E. (2021). Comparison of the Caregiving Experience of Grief, Burden, and Quality of Life in Dementia with Lewy Bodies, Alzheimer's Disease, and Parkinson's Disease Dementia. Journal of Alzheimer's disease : JAD, 80(1), 421–432.
dc.description.abstractBackground: Caregivers of persons living with Alzheimer’s disease (AD), dementia with Lewy bodies (DLB), and Parkinson’s disease dementia (PDD) are faced with numerous challenges. However, little is known about the caregiving experience across different dementias. Objective: The aims of this cross-sectional study were to examine the differences in the caregiver experience between DLB, PDD, and AD. Methods: Respondents were caregivers (N = 515; 384 DLB, 69 AD, 62 PDD) who completed a 230-question survey including sociodemographics, disease severity, neuropsychiatric symptoms, and measures of grief, burden, depression, quality of life, social support, well-being, care confidence, and mastery/self-efficacy. Results: There were no differences in caregiver age, sex, race, or education, or in the distribution of disease severity between diagnostic groups. Constructs were highly intercorrelated with positive attributes (caregiver QoL, care recipient QoL, social support, well-being, mastery and care confidence) being inversely correlated with negative attributes (burden, grief, and depression). Across dementia etiologies, no differences were reported for quality of life, social support, depression, well-being, psychological well-being, mastery, care confidence, burden or grief. Instead, we found that the caregiver’s experience was dependent on caregiver characteristics, person living with dementia characteristics and their most disturbing symptom, with behavior, personality changes, and sleep having the greatest effect on constructs. Conclusion: Caregiver ratings of psychosocial constructs may be more dependent on care recipient-caregiver dyad characteristics and the current symptoms than the underlying cause of those symptoms. Interventions to improve the caregiving experience should be developed to address specific psychosocial constructs rather than focusing on disease etiology or stage.en_US
dc.publisherIOS Pressen_US
dc.rightsCopyright: The Author(s) 2021.en_US
dc.subjectAlzheimer’s diseaseen_US
dc.subjectCaregiver burdenen_US
dc.subjectCaregiver griefen_US
dc.subjectDementia with Lewy bodiesen_US
dc.subjectParkinson’s disease dementiaen_US
dc.subjectQuality of lifeen_US
dc.subjectSocial supporten_US
dc.titleComparison of the Caregiving Experience of Grief, Burden, and Quality of Life in Dementia with Lewy Bodies, Alzheimer’s Disease, and Parkinson’s Disease Dementiaen_US
kusw.kuauthorRigby, Taylor
kusw.oanotesPer Sherpa Romeo 01/17/2022:

Journal of Alzheimer's Disease [Open panel below]Publication Information TitleJournal of Alzheimer's Disease [English] ISSNsPrint: 1387-2877 URL PublishersIOS Press [Commercial Publisher] [Open panel below]Publisher Policy Open Access pathways permitted by this journal's policy are listed below by article version. Click on a pathway for a more detailed view.

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NoneCC BYPMC PMC, Journal Website Published Version [pathway c]

NoneCC BY Institutional Repository, Subject Repository, PMC, +1 Accepted Version [pathway a]

None Institutional Repository, Subject Repository, Funder Designated Location, +2 EmbargoNo Embargo Copyright OwnerAuthors Location Author's Homepage Funder Designated Location Institutional Repository Institutional Website Subject Repository Conditions Published sources is acknowledged with citation Must link to published version with DOI Set statement to accompany
kusw.oaversionScholarly/refereed, author accepted manuscripten_US
kusw.oapolicyThis item meets KU Open Access policy criteria.en_US

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