ATTENTION: The software behind KU ScholarWorks is being upgraded to a new version. Starting July 15th, users will not be able to log in to the system, add items, nor make any changes until the new version is in place at the end of July. Searching for articles and opening files will continue to work while the system is being updated.
If you have any questions, please contact Marianne Reed at mreed@ku.edu .
Communication in Young Children with Fragile X Syndrome: A Qualitative Study of Mothers’ Perspectives
dc.contributor.author | Brady, Nancy C. | |
dc.contributor.author | Skinner, Debra | |
dc.contributor.author | Roberts, Joanne | |
dc.contributor.author | Hennon, Elizabeth | |
dc.date.accessioned | 2020-10-21T14:01:45Z | |
dc.date.available | 2020-10-21T14:01:45Z | |
dc.date.issued | 2006-11-01 | |
dc.identifier.citation | Brady, N., Skinner, D., Roberts, J., & Hennon, E. (2006). Communication in young children with fragile X syndrome: a qualitative study of mothers' perspectives. American journal of speech-language pathology, 15(4), 353–364. https://doi.org/10.1044/1058-0360(2006/033) | en_US |
dc.identifier.uri | http://hdl.handle.net/1808/30795 | |
dc.description.abstract | Purpose: The purposes of the study were to provide descriptive and qualitative information about communication in young children with fragile X syndrome (FXS) and about how families react to and accommodate communication differences in their children.Method: In-depth interviews were conducted with 55 mothers of young children with FXS. Interviewers asked mothers to describe their children’s communication, strategies they used to help promote their children’s communication, communication-related frustrations, their expectations for their children and the roles that they perceive for themselves.Results: Over half the children were nonverbal and learning to communicate with augmentative or alternative communication (AAC). Mothers reported using strategies that were developmentally appropriate and recommended by early childhood experts, such as reading and talking to their children. Many mothers identified challenges faced in helping their child to communicate, and some cited difficulty obtaining speech-language services as a challenge. Mothers identified their roles as caregiver, teacher, therapist and advocate.Conclusions: The perspectives offered by mothers are valuable because they indicate how children with FXS communicate in natural contexts. Information about mothers’ expectations and roles may help clinicians to be sensitive to variables that will impact working with young children and their families. | en_US |
dc.description.sponsorship | NIH P30 HD003110-38S1 | en_US |
dc.description.sponsorship | NIH P30 HD02528 | en_US |
dc.publisher | American Speech-Language-Hearing Association | en_US |
dc.rights | Copyright © 2006 American Speech-Language-Hearing Association | en_US |
dc.subject | Fragile X | en_US |
dc.subject | Preschool children | en_US |
dc.subject | Communication disorders | en_US |
dc.subject | Qualitative research analysis | en_US |
dc.subject | Parents | en_US |
dc.title | Communication in Young Children with Fragile X Syndrome: A Qualitative Study of Mothers’ Perspectives | en_US |
dc.type | Article | en_US |
kusw.kuauthor | Brady, Nancy | |
kusw.kudepartment | Speech-Language-Hearing: Sciences & Disorders | en_US |
dc.identifier.doi | 10.1044/1058-0360(2006/033) | en_US |
kusw.oaversion | Scholarly/refereed, author accepted manuscript | en_US |
kusw.oapolicy | This item does not meet KU Open Access policy criteria. | en_US |
dc.identifier.pmid | PMC7366822 | en_US |
dc.rights.accessrights | openAccess | en_US |