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dc.contributor.authorBrady, Nancy C.
dc.contributor.authorSkinner, Debra
dc.contributor.authorRoberts, Joanne
dc.contributor.authorHennon, Elizabeth
dc.identifier.citationBrady, N., Skinner, D., Roberts, J., & Hennon, E. (2006). Communication in young children with fragile X syndrome: a qualitative study of mothers' perspectives. American journal of speech-language pathology, 15(4), 353–364.
dc.description.abstractPurpose: The purposes of the study were to provide descriptive and qualitative information about communication in young children with fragile X syndrome (FXS) and about how families react to and accommodate communication differences in their children.

Method: In-depth interviews were conducted with 55 mothers of young children with FXS. Interviewers asked mothers to describe their children’s communication, strategies they used to help promote their children’s communication, communication-related frustrations, their expectations for their children and the roles that they perceive for themselves.

Results: Over half the children were nonverbal and learning to communicate with augmentative or alternative communication (AAC). Mothers reported using strategies that were developmentally appropriate and recommended by early childhood experts, such as reading and talking to their children. Many mothers identified challenges faced in helping their child to communicate, and some cited difficulty obtaining speech-language services as a challenge. Mothers identified their roles as caregiver, teacher, therapist and advocate.

Conclusions: The perspectives offered by mothers are valuable because they indicate how children with FXS communicate in natural contexts. Information about mothers’ expectations and roles may help clinicians to be sensitive to variables that will impact working with young children and their families.
dc.description.sponsorshipNIH P30 HD003110-38S1en_US
dc.description.sponsorshipNIH P30 HD02528en_US
dc.publisherAmerican Speech-Language-Hearing Associationen_US
dc.rightsCopyright © 2006 American Speech-Language-Hearing Associationen_US
dc.subjectFragile Xen_US
dc.subjectPreschool childrenen_US
dc.subjectCommunication disordersen_US
dc.subjectQualitative research analysisen_US
dc.titleCommunication in Young Children with Fragile X Syndrome: A Qualitative Study of Mothers’ Perspectivesen_US
kusw.kuauthorBrady, Nancy
kusw.kudepartmentSpeech-Language-Hearing: Sciences & Disordersen_US
kusw.oaversionScholarly/refereed, author accepted manuscripten_US
kusw.oapolicyThis item does not meet KU Open Access policy criteria.en_US

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