American Indian/Alaska Native Willingness to Provide Biological Samples for Research Purpose

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Issue Date
2012-06Author
Filippi, Melissa K.
Young, Kristin Leigh
Nazir, Niaman
Williams, Chandler
Brown, Travis
Choi, Won S.
Greiner, K. Allen
Daley, Christine Makosky
Publisher
Springer Verlag
Type
Article
Article Version
Scholarly/refereed, author accepted manuscript
Rights
© Springer Science+Business Media, LLC 2011
Metadata
Show full item recordAbstract
This article examines the willingness of American Indian/Alaska Natives (AI/AN) to provide biological samples for research purposes. Prior cases of abuse and misuse of individuals, materials, and data highlight ethical research concerns. Investigators may be hesitant to engage AI/ANs in research projects. We conducted a survey of AI/ANs in the central plains region of the US over 1 year. This convenience sample completed a series of questions on biological samples and research. Survey results (N = 998) indicate that 70.15% of AI/ANs would be willing to provide saliva/spit for a specific study with the proper consent and control of samples. In conclusion, researchers should find ways to work with and for AI/ANs, assuring participant input in the research process.
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Citation
Filippi, M. K., Young, K. L., Nazir, N., Williams, C., Brown, T., Choi, W. S., … Daley, C. M. (2012). American Indian/Alaska Native Willingness to Provide Biological Samples for Research Purposes. Journal of Community Health, 37(3), 701–705. http://doi.org/10.1007/s10900-011-9502-3
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