The Adults with Down Syndrome Specialty Clinic (ADSSC) was established in 2008 to better meet the unique needs of adults with Down syndrome due to many concerns regarding the health care that patients with Down syndrome receive. The purpose of this study was to assess the quality of care that the patients and families receive at this clinic and determine any additional resources that need to be incorporated into the patients’ care. A satisfaction survey was developed and mailed to all of the patients (N=75) and 24 responses were obtained. The Likert scale questions were analyzed using weighted calculations and the written narrative responses were reviewed. There were six categories that were analyzed which include: ease of getting care, waiting, provider, nursing staff, all other staff, and facility. Overall, the patients were satisfied with the care that they are receiving at the ADSSC. However, two main concerns for the patients were better location of the facility and better parking. Many of these adults face difficulty finding services that can meet their individual needs. As a result of this study we hope to provide more access to resources as well as high quality healthcare to this population.
The University of Kansas prohibits discrimination on the basis of race, color, ethnicity, religion, sex, national origin, age, ancestry, disability, status as a veteran, sexual orientation, marital status, parental status, gender identity, gender expression and genetic information in the University’s programs and activities. The following person has been designated to handle inquiries regarding the non-discrimination policies: Director of the Office of Institutional Opportunity and Access, IOA@ku.edu, 1246 W. Campus Road, Room 153A, Lawrence, KS, 66045, (785)864-6414, 711 TTY.