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Mothers’ perspectives on challenging behaviours in their children with fragile X syndrome
Muller, Kristen Brady, Nancy C. Warren, Steven F. Fleming, Kandace K.
Muller, Kristen
Brady, Nancy C.
Warren, Steven F.
Fleming, Kandace K.
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Abstract
Background: Individuals with intellectual and developmental disabilities are more likely to
engage in problem behaviours than peers with typical development. The purpose of this study was
to provide descriptive and qualitative information about problem behaviours in children with
fragile X syndrome (FXS) and how families respond to these behaviours.
Method: We examined interview responses from 53 mothers of 9-year-old children with FXS.
Results: Defiance, tantrums, inattention, stereotypy, and aggression were the most frequently
reported problem behaviours of children with FXS. Stereotypy, physical aggression, self-injury,
and elopement were reported more often by mothers of children with dual diagnoses of FXS and
autism than by mothers of children with a single diagnosis of FXS.
Conclusions: Results indicated that for many families, by 9 years of age, problem behaviours
led to frustration and altered family activities.
Description
This is an Accepted Manuscript of an article published by Taylor & Francis in Journal of Intellectual & Developmental Disability on 16 Sep 2018, available online: doi.org/10.3109/13668250.2018.1496379
Date
2018-09-16
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Taylor & Francis
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Keywords
Fragile X syndrome, Autism spectrum disorders, Problem behaviour
Citation
Muller, K., Brady, N. C., Warren, S. F., & Fleming, K. K. (2019). Mothers' perspectives on challenging behaviours in their children with fragile X syndrome. Journal of intellectual & developmental disability, 44(4), 481–491. doi:10.3109/13668250.2018.1496379