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American Indian/Alaska Native Willingness to Provide Biological Samples for Research Purpose
Filippi, Melissa K. Young, Kristin Leigh Nazir, Niaman Williams, Chandler Brown, Travis Choi, Won S. Greiner, K. Allen Daley, Christine Makosky
Filippi, Melissa K.
Young, Kristin Leigh
Nazir, Niaman
Williams, Chandler
Brown, Travis
Choi, Won S.
Greiner, K. Allen
Daley, Christine Makosky
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Abstract
This article examines the willingness of American Indian/Alaska Natives (AI/AN) to provide biological samples for research purposes. Prior cases of abuse and misuse of individuals, materials, and data highlight ethical research concerns. Investigators may be hesitant to engage AI/ANs in research projects. We conducted a survey of AI/ANs in the central plains region of the US over 1 year. This convenience sample completed a series of questions on biological samples and research. Survey results (N = 998) indicate that 70.15% of AI/ANs would be willing to provide saliva/spit for a specific study with the proper consent and control of samples. In conclusion, researchers should find ways to work with and for AI/ANs, assuring participant input in the research process.
Description
Date
2012-06
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Volume Title
Publisher
Springer Verlag
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Research Projects
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Keywords
American Indian/Alaska Native, Biological sample, Ethics, Participation
Citation
Filippi, M. K., Young, K. L., Nazir, N., Williams, C., Brown, T., Choi, W. S., … Daley, C. M. (2012). American Indian/Alaska Native Willingness to Provide Biological Samples for Research Purposes. Journal of Community Health, 37(3), 701–705. http://doi.org/10.1007/s10900-011-9502-3